Welcome! We created this page to help caregivers “meet” other families with aphasia who may be going through similar situations. So many caregivers feel overwhelmed, guilty, exhausted, confused, or uneducated but have no one to turn to. Most caregivers find that their friends don’t understand what a superhero the caregiver is expected to be at all times.
We hope that you will find a caregiver story that helps you.
Aphasia Caregivers in Their Own Words
We asked some aphasia caregivers to share some of the challenges and joys of caregiving, as well as some tips for how to keep their sanity!
Changes in Family Dynamic due to Aphasia
Erica talks about her husband, Todd, and how their young family ‘s dynamic has changed, how how she hopes it will change again!
Ruth caregiver story
Aphasia Caregiver Shari challenges herself!
Shari’s husband Dick, a retired minister and social butterfly, is recovering from aphasia. But what Shari really got out of intensive therapy was a challenge for herself!
Aphasia In Their Own Words: Rob
Rob talks about how aphasia has pushed him to set goals, both in recovery and logging miles.
Disappointed with the lack of aphasia education
Melissa came across the country for Intensive Aphasia Therapy because of the lack of Aphasia knowledge and experience in her home state.
Disappointed with the lack of aphasia education
Witnessing how hard her husband Kory has worked, Jamie is in awe of how much thought needs to go into every sound he makes. Her biggest fear is still answering those who have expectations for Kory’s recovery.
Doctor’s dismissed her aphasia and “phantom accent” as conversion disorder!
Kristine, 29, was studying for her Nursing degree when she noticed something was wrong. It took 2 months for doctors to agree to an MRI, after initially diagnosing her with “conversion disorder” and dismissing her.
Former Town Mayor and Stroke Volunteer Discharged from Speech Therapy
After being told there was no progress to document, Greta and Frank had almost given up hope. Without structured speech therapy, Greta saw Frank withdraw from his own life. They now leave with new strategies to aid in their communication.
Fully Understanding Aphasia and Learning to Communicate
Cecile came to us with her daughter with goals of understanding what having aphasia really meant. Now fully realizing their position, they are set up for further their progress both physically, and in their communication skills!
Ana was afraid her sister had lost her voice
Carolina suffered a stroke at the end of her honeymoon. Her husband Mark, and sister Ana became her caregivers, but with two very different styles.
Aphasia has taught Regina patience!
“It’s not about all the reading and knowledge from the internet”, Regina says. It’s about about adapting to the situation.
Cody’s Brain Injury and Aphasia
After his young son was hit by a drunk driver, he sustained a severe brain injury and was left in a coma. Todd and his family spent over a year in and out of various rehab hospitals until he was finally ready for Intensive Aphasia Therapy. Learn about Cody’s progress during his 4 week program.
Jen: A Caregiver Story of Conduction Aphasia
Jen’s father was on the way to revolutionizing the car industry when he suffered a stroke. Now with Conduction Aphasia, the family has to find a new normal. She also shares her experiences with our program.
Nairda: A Caregiver story of bilingual Broca’s Aphasia
Nairda and her husband, Aldo, came all the way from Puerto Rico twice to get help for severe Broca’s aphasia. She talks about how aphasia has affected their family business. The therapists used both English and Spanish in Aldo’s treatment, which lead to great improvement.
Ann: A Caregiver Story of very severe Broca’s Aphasia and Apraxia
Ann’s husband, Bobby, was a hard-working man who loved to train his dogs and hunt. When he came to The Aphasia Center, he couldn’t say any words and couldn’t communicate what he wanted.
Tammy: A Caregiver’s Story of Severe Broca’s Aphasia and Apraxia
This is the story of a 56-year-old retired Marine with aphasia and apraxia. Robert’s communication was restricted to “two” and “ah-ah-ah” after his stroke. He didn’t want to socialize anymore and was his toughest critic.
Tim: Severe Dysarthria and Agraphia
Terri: A Family with Wernicke’s Aphasia
Terry describes what their life is like since her significant other got Wernicke’s aphasia. “The old Michael is gone”.
Ken: Challenges in Anomic Aphasia
Ken talks about his wife’s personality before her stroke and how her anomic aphasia has affected their lives.
Laura and Paul: Very Severe Broca’s Aphasia
Sarah Scott’s Story: A Young Person with Aphasia
Sarah Scott became a YouTube sensation when she had her stroke at age 18. Her family decided to video her progress so that she could see the changes. She became a beacon for young persons with aphasia, has been on many news and tv shows, and won many awards for her work in bringing aphasia and stroke awareness to the forefront.
Colleen: Transcortical Sensory Aphasia from Traumatic Brain Injury
Lauren was a successful 25 year-old on a business trip when she was struck by a car. Her mother talks about how the family’s life has changed, Lauren’s progress, and Lauren’s struggle with aphasia.
Kaye’s Story: Primary Progressive Aphasia
John’s family talks about his diagnosis, treatment, and the gains they made as a family in understanding how to communicate with him.
Roseanne: Broca’s Aphasia from a Traumatic Brain Injury
Met Roseanne, mother of Mary, who got aphasia from a traumatic brain injury. Roseanne describes the accident, the changes the family had to make, and how Mary is recovering. Her advice: “You’ve got to be aggressive” with the aphasia therapy.
Bob and Nancy: Severe Broca’s Aphasia
Bob’s partner, Nancy, has severe Broca’s aphasia. Bob talks about their life together, her stroke and strides made in aphasia recovery. Having no insurance or resources, Nancy has benefited greatly from an community aphasia group. Despite her communication difficulties and time since her stroke, Nancy participates fully in life and doesn’t give up.
Stephanie and Brent: Broca’s Aphasia with Dysarthria
Stephanie talks about her 46-year old husband’s stroke and resulting aphasia. She also offers great advice about socializing with aphasia.
Colleen: Severe Broca’s Aphasia from Traumatic Brain Injury
Colleen discusses living with aphasia with her husband, Greg. Greg has aphasia from a traumatic brain injury while serving our country. He has made amazing progress. Her intensive aphasia program testimonial is here.
Carol and Tom: Global Aphasia
Carol’s story touches on all of the important aspects of living with aphasia. Her husband had a moderate global aphasia that changed into a moderate Isolation aphasia. Having been married for 41 years, Carol has great insight into how Tom’s aphasia affects their marriage, but also shows great hope and understanding of him as a person. Her testimonial is available here.
Melissa: Broca’s Aphasia
Melissa is part of a young family with aphasia, including two teenage girls. Her spouse has Broca’s aphasia. She talks about juggling it all–family, therapy, hope, recovery, the challenges and triumphs of living with aphasia. Watch her testimonial here.
Lisa and Jane: Conduction Aphasia
Lisa discusses her experience with her mother, who has conduction aphasia. In this type of aphasia, speech is fluent (speaking in sentences), understanding is adequate, but repetition of words is poor. The fluent speech contains frequent, inconsistent sound errors (NOT apraxia) and anomia is prevalent. Her testimonial is available here.
Shirley and Troy: Severe Wernicke’s Aphasia
Shirley talks about her husband who has severe Wernicke’s aphasia. You have never met a sweeter family.